The VE Bulletin Excerpts
'No price is too high to pay for the privilege of owning yourself' Rudyard Kipling
Vol 20: No 2 July 2003
Strength and Solidarity in Sydney - the EXIT Australia conferenceFrom May 30th to June 1st
five members of the SAVES committee attended the EXIT Australia
conference in Sydney, entitled most aptly "Killing me Softly - Love,
Death and Dying in Australia". Julia Anaf, Mary Gallnor and I attended
as SAVES representatives, while Anne Hirsch and Marika McKerral
attended at their own expense.
This second EXIT conference was
generously supported by the NSW Voluntary Euthanasia Society and
featured speakers from Australia, the USA and New Zealand.
Dr Philip Nitschke warmly welcomed the
170 participants and Professor Peter Baume AO, Patron NSW Voluntary
Euthanasia Society, Emeritus Professor of Medicine, and past federal
liberal Minister for Health, opened the sessions. He pointed out that
the voluntary euthanasia societies (VES) and EXIT follow two different
approaches toward law reform, where each can, and does, respect the
other.
Later in the conference Professor Baume
raised an interesting point when he explained the difference between
'issue logic', which we follow, and 'electoral logic', which members of
parliament follow in order to gain re-election. He said that perhaps
change would come through court rulings because lawyers are required to
look at the merits of issues. Of course this is what we also require of
our lawmakers, but the reality is that many of them often are reluctant
to do this or represent the large majority of voters who want voluntary
euthanasia legislation. This is because they may then lose the votes of
the 8-10% minority that oppose legislation.
Dr Chris Tennant, prominent psychiatrist
and academic then spoke, quoting research showing that when depressed,
patients were asked to consider that they had a hypothetical terminal
illness, with 55% claiming they would want euthanasia or suicide.
However, when they were treated for the depression, 30% still said they
would choose these options. This is very significant in the argument
for law reform.
Professor Stewart Dunn, Professor of
Psychological Medicine at the University of Sydney, informed us about
doctors breaking bad news to patients, and an innovative training
course which stresses the necessity for empathy, rapport and humour in
a problem based learning and role playing approach.
The Hon. Ian Cohen, Greens MLC NSW then
spoke thanking the long term voluntary euthanasia advocates and
informing us of his planned voluntary euthanasia trial referendum bill
which would allow a legal, medically supervised trial of voluntary
euthanasia for 18 months. He emphasised the fact that those who are
opposed to law reform are extremely ruthless in pushing dishonest
debate.
Dr Dick Macdonald, Medical Director of
Hemlock, the largest voluntary euthanasia organisation in the USA,
informed us of the Caring Friends programme established in 1998, in
which trained volunteers sit with a terminally or hopelessly ill
Hemlock member when they end their life. Surely it is everyone’s right
to have a friend at the end. Dick was invited to impart his particular
expertise in light of the possible establishment, by EXIT, of Nancy’s
Caring Friends programme.
The conference was then privileged to
hear Lesley Martin’s story about her mother’s intense suffering and
eventual slow death from bowel cancer, documented in a book entitled
"To Die Like a Dog". Lesley is currently on bail, awaiting trial on a
charge of attempted murder of her mother, and she spoke sincerely and
honestly about the horrors of her situation.
Eminent Queensland barrister, Terry
O’Gorman QC, now acting pro bono for the 21 people who sat with Nancy
Crick when she died, spoke about the courts being forced to cope as
parliament refuses or fails to act. He pointed out that we are in a
minority of one in not having a Bill of Rights. Kep Enderby QC, past
Federal Labor Attorney General and current President of NSW VES, then
spoke, maintaining that voluntary euthanasia legislation is inevitable
and that such a legal trial period is a different approach.
Ken Buckley from the NSW Council of
Civil Liberties gave new information to some of us, I’m sure, when he
said that one has the right to decline to speak to the police or
accompany them to the police station unless charged with a crime. He
also proposed a motion about engaging in acts of civil disobedience, as
per the actions of 'Nancy’s 21'. This motion was passed, and is to be
enacted at the discretion of the voluntary euthanasia societies.
David Williams, a representative from
People Living with HIV and AIDS (PLWHA) informed us about the tragic
spread of this disease and its social consequences. He was raising
funds for South African women so affected, by selling beaded brooches
that the women make as a means of some payment towards their medical
treatment.
At the conference dinner Derryn Hinch
interviewed three accused 'murderers', Lesley Martin, Ralph Vincent and
Fred Thompson who spoke most eloquently and poignantly about their
experiences. They have all made public their support of loved ones in
gaining final relief from their intolerable suffering; support which
has seen them being investigated by the police.
The Bob Dent Award, established in honour of the first person to use the now overturned Northern Territory Rights of the Terminally Ill
Act, was presented to John Edge, convenor of the Gold Coast support
group for the Qld VES and leader of 'The 21'. John had publicly
declared his presence at Nancy’s side soon after her death and he is a
most worthy recipient of the award.
Dr Nitschke opened his talk
"Practicalities: the peaceful pill and beyond" positively, by saying he
would fight very hard to support voluntary euthanasia legislation, and
that we all must support it. He claimed that legislation is to be
striven for but something is needed now, and EXIT is working to meet
this need. Philip pointed out that the fight for law reform is not
restricted to a state approach, even though voluntary euthanasia
legislation is a state issue, because the Federal Government is also
involved. For instance their overturning of the NT law and their
restrictions on voluntary euthanasia laws in Australia’s other
territories, their restrictions on the importation and exportation of
devices relating to suicide, and their proposed laws about curtailing
suicide information on the internet are all cases in point. It was
agreed that the latter two are a direct attempt to control Dr
Nitschke's activities, and a motion calling on the Federal Government
to repeal the first was passed by the conference.
As a participant of the concluding panel
discussion on new directions for voluntary euthanasia, I spoke firstly
in response to an earlier statement, to assure those present that SAVES
does not feel there is a rift in the movement. I explained that a rift
is caused by failure in communication, disrespect, and anger, and I'm
sure the importance of securing respectful working relationships within
the movement is acknowledged by all of us as being most essential to
the achievement of our common goal. Within this unity, diversity of
approach can be a strength.
The great value of regular meetings for
all of us in the voluntary euthanasia movement cannot be
underestimated. Throughout the conference I felt very heartened by the
mutual acceptance and respect that was evident in our interactions.
Facilitated so ably by EXIT and the NSW VES in Sydney this year, and to
be jointly convened by EXIT and the QLD VES in Brisbane 2005, these
conferences enable an understanding and appreciation of each other’s
work and successes.
In explaining SAVES future strategies for law reform I said that we were fortunate in having the Consent to Medical Treatment and Palliative Care
Act since 1995, and that a fifth voluntary euthanasia bill is currently
before our parliament. We are heavily committed to supporting the Dignity in Dying
Bill and, even if this is not successful, we are extremely fortunate in
having committed members of parliament, such as the Hon Sandra Kanck
MLC, who are dedicated to introducing other such bills until common
sense and compassion prevails.
We are very appreciative of EXIT’s
Deliverance news service, to the extent that we support it with
donations. I concluded by saying that I feel we are all very fortunate
in having two parallel approaches to law reform. The undoubted success
of this conference is a credit to the dedicated work of both EXIT and
the NSW VES. The following was written in the conference programme: "
The conference aims to bring together people with diverging views and
attitudes to VE from all states of Australia and overseas so that a
useful exchange of ideas can take place." This aim was magnificently
accomplished by all of the participants.
Frances Coombe
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