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The following article is from the SAVES newsletter, The
VE Bulletin, Vol 14 No 3, Nov 97
Managed Death replacing Assisted
Suicide in the U.S.
The following article appeared in the Florida newspaper, The Tampa
Tribune, on 4 July 97. It could just as well have been describing the
situation in Australia.
When the Supreme Court ruled last week that States may continue to ban
doctor-assisted suicide, it addressed the kind of death in which doctors
actively help patients kill themselves.
What was not considered in that decision is the
fact that nowadays many, if not most, Americans die because someone - doctors,
family members or they themselves - has decided that it is time for them
to go.
What might be called managed deaths, as distinct
from suicides, are now the norm in the United States, doctors say.
The American Hospital Association says that about
70 percent of the deaths in hospitals happen after a decision has beenmade
to withhold treatment. Other patients die when the medication they are
taking to ease their pain depresses, then stops, their breathing.
There is less information on the deaths that occur
in nursing homes and in private homes. But doctors say they often discharge
patients from a hospital with the implicit understanding that they are
sending them home to die, with a morphine drip for pain or without the
ministrations of what they would call overzealous doctors at a hospital
who might start antibiotics to quell a fever or drugs to stabilise a fluttering
heart.
"It's called passive euthanasia," said Norman Fost,
director of the Program in Medical Ethics at the University of Wisconsin.
"You can ask who's involved and is it really consensual, but there is no
question that these are planned deaths. We know who is dying. Patients
aren't just found dead in their beds."
Doctors, Fost said, decide not to provide antibiotics
to treat an infection, or they withdraw drugs that maintain a patient's
blood pressure, or they remove a patient from a ventilator.
Maurie Markman, a gynaecological cancer specialist
at the Cleveland Clinic, said a typical case might involve a woman with
ovarian cancer who at first responded to chemotherapy but whose cancer
now seemed impervious to the powerful drugs, and had developed bowel obstructions.
He could operate to try to remove the obstructions, but the chances are
that it would do no good. Or, Markman said, "you can put a tube in to drain
her stomach so she doesn't throw up." "But then", he added, "you have to
ask the woman, 'Is that what you really want?' " She would have to live
with that tube for the rest of her life.
Markman, who said he sees such patients "at least
once a week," tells the woman that he wants to focus on her symptoms rather
than on her underlying disease. He sends her home with pain medications
if she is in pain and anti-nausea drugs if she is nauseous, but the woman
will never eat or drink again because of her obstructions. She will not
return to the hospital for any sort of aggressive treatment.
Markman said he never bluntly tells the woman that
there is no hope and she is going to die, but he, and probably she, know
what is going to happen - and soon.
Is that assisted suicide or assisted death, or is
it relief of suffering? For Markman, the answer is clear. "My intent always
is to relieve suffering. If that's my goal, I can look myself in the eye.
I can go to sleep at night."
Joanne Lynn, director of the Center To Improve Care
of the Dying at George Washington University School of Medicine, said her
typical case might be an old man, fragile and with multiple medical problems.
She will finally discharge him from the hospital and send him home to his
family, knowing that the decision to send him home is a decision to let
death come soon.
If he develops a fever, there is no reason even
to take his temperature, she said. "The agreement is that he will not come
back into the hospital for almost anything."
Lynn added: "Many of the decisions may be ambiguously
articulated. They may be as much as a nod, something brought up in conversation,
'How do you feel about staying here?'"
But underneath the nods and significant glances,
she said, is a conclusion that it is time for the patient to die.
Yet, Margaret P. Battin, an ethicist at the University
of Utah, asks, "How much do the patients and family members really understand?"
She said patients and family members might not grasp the hidden message
in their doctor's words.
"When a patient is asked, 'Do you want to go home
and be with your family?' it would be easy to misinterpret that," Dr. Battin
said. "Or", she said, "if a doctor says, 'I can see you're in pain, let's
start a morphine drip' ", a patient may not realise that the pain medication
will shorten his life. "I can imagine a great many patients who would say,
'I don't want this pain, but if the medication is shortening my life, I
can live with the pain,' " she said.
"That lack of candour about how the patient's death
will occur and under what conditions is the thing that's particularly troubling",
Dr. Battin added. "The patient is being invited to make a choice without
understanding what the stakes are."
It is even worse, she said, when family members
make these choices for patients.
Gina's article highlights the inherent complexity of health care in
many end-of-life situations and the potential for misunderstanding and
confusion. Although the approach taken is usually regarded as ethical and
certainly as legal, it is not satisfactory. It is hypocritical to take
the position that once death is decided as in the patient's best interests,
a slow death is always better than a quick one. As in Irma's situation
described in the preceding article, the denial of the latter option prevents
clear communication about prognosis and options. The potential for abuse
and mistakes, so much a part of the minority opposition to legalising voluntary
euthanasia, must surely be greater when clear communication is denied.
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