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The VE Bulletin Excerpts
'No price is too high to pay for
the privilege of owning yourself' Rudyard Kipling
Vol 19: No 3 November 2002
July Meeting : guest speaker Dr Bruce Rounsefell
SAVES members welcomed Dr Bruce
Rounsefell who spoke on the topic Successes and limitations of current pain
management techniques. He explained that there are three types of pain: acute,
chronic, and the pain associated with cancer. Acute pain, while distressing,
plays a valuable role as a warning sign, but the function or value of chronic
pain is hard to establish. Cancer pain is a mixture of both, as disease involves
a series of acute pains. Dr Rounsefell stated that it is not possible to
give satisfactory treatment in all cases and research continues for even
better techniques. There are widespread changes in the body due to pain,
including cardiovascular, respiratory, muscular and even hormonal.
Secondary pain is ubiquitous, as the brain and the body are not separate
entities and there are emotional responses of fear and anxiety. Depression
and anger are normal emotional responses to chronic pain, and clinical depression
may need to be managed. Dr Rounsefell claimed that ninety percent of patients
with cancer get relief from oral analgesia, seven percent get good relief
with other forms of pain relief delivery, while three percent have spinal
catheters inserted which require only one percent of the equivalent oral
medication.
Pain is life changing, and severe pain stressful to the extent that it can
be considered a chronic illness in itself. The efficient delivery of pain
management may extend the life span. However there are limitations and barriers
to good pain relief. The side effect of drugs is one, as there is no such
thing as a drug without side effects, even though some are of very high quality.
Complex pain also requires a range of medications.
Another limitation is that neuropathic pain is often not relieved by morphine
and there are difficulties in drug delivery. For instance some patients cannot
swallow and will need infusions or injections. Sometimes there is a failure
to address other issues, including the emotional and spiritual dimensions
of pain and dying. Emotional distress makes pain relief difficult and palliative
care may play an important role. Dr Rounsefell claimed that humour can play
a crucial role in managing pain, and that some people gain benefit from humour,
even within the framework of very distressing circumstances.
A particularly difficult and upsetting limitation to successful pain relief
is the unexpected lack of response to medication. Some pain is so intractable
that it may be necessary to immobilise, or induce paraplegia to alleviate
it. TENS machines deliver an electric impulse to peripheral nerves to 'scramble'
pain messages, and promote the production of endorphins. However they have
variable success as the body may try to adapt to the machine, thereby making
it less effective.
Both heroin and morphine have the same pain relief properties but differ
in their euphoric effect, with heroin being particularly addictive due to
this property. There are also different receptors for pain relief and euphoria.
Dr Rounsefell reminded the audience how societal attitudes have changed,
with the result that there is now a greater stigma attached to heroin use.
The use of steroids such as cortisone, which have anti-inflammatory properties
reveal a success rate of approximately fifty per cent. He also advised that
as people age it becomes more difficult to get the appropriate level of medication,
with methadone being particularly problematic. However the rotation of opiates
is one way to avoid a growing tolerance to any one medication. Changing to
an alternative opiate will often allow effective pain relief from a lower
dose.
These medical barriers to effective pain relief are exacerbated by 'horrendous'
waiting lists at every pain clinic. Cancer patients are given greatest priority,
with a four to five month wait for other conditions. Those people already
seen by the clinic, but needing further treatment, may wait twelve months.
The waiting list for multi-disciplinary team assessment is between six and
ten months. There is very limited training for university students, while
long waiting lists may discourage doctors from even referring patients to
clinics.
The topic inspired many questions from the floor and provided much needed
information for members. It is understandable that Dr Rounsefell chose not
to comment on the issue of voluntary euthanasia. However one of the more
interesting questions posed was whether or not it was feasible that merely
knowing that voluntary euthanasia was available as a final option, may itself
offer some relief of pain and anxiety. Dr Rounsefell considered that it was
quite possible, as pain is highly complex, being both emotional and physical.
This important discussion reinforced the need for us to acknowledge the many
pain management successes in recent years. However it also revealed serious
limitations and challenges both at the clinical and resource level. This
is despite the constant claims by opponents of voluntary euthanasia that
sophisticated pain management has all the answers, and politicians stating
repeatedly that they support greater pain management and palliative care
services.
Unless there is a large injection of funds for pain management, these huge
challenges will continue for both practitioners and patients suffering from
a range of distressing and painful conditions. Even then there will always
be a small minority of patients whose suffering will only ever be able to
be relieved by voluntary euthanasia.
Arguably the debate on voluntary euthanasia will continue to raise public
awareness and thereby play an important role in advocating for improved pain
management techniques and reduced waiting lists at pain clinics, while as
a law reform society, we continue to promote choice for voluntary euthanasia.
Julia Anaf
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